In January, his doctor, Alexis Thompson of Northwestern University, told him that he had no more sickle cell disease.
Hubbard said it was strange to think that he had a future.
“I’m more serious about life,” he said. “I didn’t think I had a life.”
Helen has also adapted to life as a healthy person. Her pediatric hematologist, Dr. Alexander Nguve of Phoenix Children’s Hospital, was observed in a patient with sickle cell disease who had been cured by a bone marrow transplant.
“Remember that they are hospitalized a lot with sickle cell disease,” he said. “There are so many restrictions on their lives. They are depressed, and as they get older, they find that life expectancy is 40 years. They say,” What does it mean to do something? Do you start thinking? “
When they healed, he said, “It’s as if the world belongs to them.”
When Dr. Ezric gave Helen good news a year ago, Helen was silent on the test bench without dare to speak.
Helen and her family then moved from Lawrence, Massachusetts to Mesa, Arizona. I have been tracking her progress for over two years. A lifetime Stoic taught her to keep her emotions on her own. She barely talked to me in the dire situation of staying in the hospital for a month for gene therapy. Even after that was done, she tapped her mother’s arm and pointed to wanting an ice cream cone while walking through the Faneuil Hall Marketplace in Boston.
Freed from illness, she became much more extroverted. On summer weekends, she set foot in arcades and water parks and tubed.
Pioneering gene therapy released her from sickle cells. Do you have a cure?
Source link Pioneering gene therapy released her from sickle cells. Do you have a cure?